Tuesday, April 28, 2009
So I was sitting there thinking today. When I took Cyrus to his appointment last week the office gave me the number for the scheduling person. I was thinking am I supposed to call her or is she supposed to call me. Well I called her and low and behold I was on her list of people to call today. So she says the earliest available appt for a cath is JULY 29!!!! Can you believe that?!? Three months away!!! I was bummed to say the least. Now I get to sit and worry for another 3 months and answer questions for 3 more months. But I guess it's not emergent so he isn't to the point where they are worried tooo much. On a good note she said she would put me on the cancelation notice. So if someone gets cancelled they will call me. So now I guess I can try to get on with things and plan life. LOL. Here's to hoping the next 3 months goes quickly.
Friday, April 24, 2009
So I couldn't sleep last night and fell asleep at 3:30 then had to get up at 6AM. We started driving and got there like one hour early(stupid rush hour traffic lol). We saw the Dr and he says why should we be concerned? I felt like I was back in school and just had a pop quiz. LOL. Luckly I knew the answer. He said we don't like to wait till a kid is symptomatic cause usually that means we have waited too long. Then he says it's time to do the cath. I already knew they were going to do that but just hearing him say it sounded much more real. Anyway I asked if they still put them to sleep and he said yes they sedate them and intubate them. He said it's easier because there is an anthesthesiologist there to manage the patient and he can concentrate on his heart. Fine with me. I knew that they could possibly balloon his valve and I asked him about this. He said he wasnt a canadate and that we are probably looking at a replacement. So now we are waiting again for another phone call. He said that they could possibly get this all fixed up in the next couple of months. I had a look on my face, he was like what. I said I just want to get it over with. He said he could possible fit me into a cancelation. So like I said waiting by the phone again.
Thursday, April 23, 2009
So we go to All Children's Hospital tomorrow. We have to get up at 6 AM and drive to St.Pete. It's only 1 1/2 away but it will be a long ride. So keep us in your prayers. It's only a consult and then they will schedule his cath at a later date. We will keep you up to date on the details.
Wednesday, April 22, 2009
So I got a call last week that the Dr. who is supposed to be seeing Cyrus is going to be in a procedure at the time of his appt. so we had to change it to 9:45 in the AM. Not soo bad but that means I had to take 2 days off of work instead of one. Well I made to where I have seven days off IN A ROW.... WOOOHOOO!!! Things still look good and we are going tob be heading up at 6AM on Friday. Wish us LUCK.
Sunday, April 12, 2009
So we had Easter today...alot of drama but we had a great time and the boys said they had the best Easter ever sooooo I guess all is well. We went to Trav's parents house and the boys had a long time to swim outside and then hunt Easter Eggs. Thanks to Trav's Dad they all got a little money. Then we went to a friend's house and they had great food, great friends, and the boys again got to swim with a bunch of kids and then hunt MORE Easter Eggs. They made out like bandits. The parents also got to hunt eggs with lottery tickets and money. OOOO I didn't win anything and when that black snake came out it was time for me to be done with the hunting. LOL. Cyrus decided that he wanted to do belly flops in the pool except they turned into chest flops. Of course the paranoid Mom I am made him stop. I told him that's the last thing we need right now. LOL. Anyway Happy EAster to All.
Friday, April 10, 2009
Alot of people know that Cyrus has a bad heart, well a bad valve. He had problems with his heart when he was born and he had surgery when he was 1 week old. Among other things he biggest issue was he aortic valve. That is the valve that carries the blood from your heart to the rest of your body. His was hard and thick and didnt move the blood right. The surgeon was able to thin is out and get it moving better so he didn't have to replace it. Then when he was 6 months old the Dr. did a cardiac cath on him where they send a catheter into his heart and blow up a balloon in that valve to open it up better. He had a another cath at 3 years old but they just went in and looked. Now he will be 8 years old in May and we have been following with a cardiologist every 6 months. This last appt. he said that the numbers are looking a little bit worse so he wants to send him for another cath. So now we have an appt with a Dr. at All Children's Hospital in St. Petersburg to meet with him and schedule another cath. I think theworse part about it apart for my 7 year old having to go through a procedure, is what to tell him. The last time he went he was 3 so there wasn't much to say. Now he understands and remembers a heck of alot more. He is a tough kid. Anyone who knows him knows that. I think God made him that way for a reason, so he would be tough enough to go through all this. He will eventually need to have that valve replaced but the later the better because the valves they can put in him won't grow with him and he will have to have them replaced alot more often. Keep us in your prayers that this will be uneventful.